A combination of two things is presenting a challenge.
Through all of this, a very helpful coping strategy has been engrossing oneself in the task of clever strategies to continuing doing what you want to do, being a regular and resourceful person. These strategies are better when they are your own. More personal, more satisfying and truly better.
Challenge one: My arms and core are getting weak to a point where it is difficult to do much for myself. Clever strategies are not so appealing when you run out of them. I rely on Mary for most everything now. What a wonderful person.
Challenge two: An introduction to medical problems. Outside of ALS, I have been a model of health. It’s funny how that sticks in your head, even when sitting in an electric wheelchair. Yesterday, I spent the day in the ER with a swollen leg and a fever due to a large blood clot. This was surely due to my lack of movement. A life built around medical intervention, and waiting for others to do things for you, is not a life that I find appealing. When being discharged, the nurse told me “no sitting for extended periods of time”. Hmmm.