There might be a misconception of my life as seen through the blog. I tend to sit down and write something when emotions are strong. Emotions tend to be strong during times of sadness and longing. However, most of my time is not spent being sad or having feelings of longing. Much of my time is living a surprisingly ordinary, forward looking life full of good people and interesting occurrences.
Numerous people have given me numerous books on dealing with ALS. It is surprising how many of them there are. I appreciate it, it is kind and it does not bother me, but after reading some of the first one, I put it down and realised that they belong on the shelf. I don’t want to live a disease. I don’t want to have anything to do with this disease. I just want to live my life. It just so happens that my life consists of learning to get along by inventing new strategies to do ordinary things. Just do the best that you can and get on with it.
Our lives are best when we are adaptable and engage in the avenues that are available to us.
I always bristled a little when I hear a common line taught to children. People love to tell kids “you can be anything you want to be”. You can’t! But you can be something very good. You just have to find out what that is and give it a good effort.